yngzaklynch
New member
Hello everyone. Wow I'm blown away by the prayers, support and kind words. You guys are the best. Just to fill everyone in real quick...
We had a regular visit with the pediatrician last week. There was a spike in the her head growth with may indicate "water on the brain". Basically the fluid around her brain wasn't being absorbed fast enough and might be causing pressure. The reuslt in a larger head diameter and possibly brain damage. They also were concerned that her vision wasn't good to her left side. She has some difficulty turning her head to the left. On tope of all of this she had pnemonia. We knew she recently got a cough but the night before the doc visit we knew it was getting bad. The pnemonia is pretty much gone now.
Today we went into Childrens Hospital in Pittsburgh. These people were great. Extremely knowledgabe and the most efficient hospital I've ever seen. It was busy but everything got done early and fast. Anyways after all is said and done... she does have a little excess fluid but nothing they're really worried about. We have to go back in a few months for a follow up. No worries with her vision. She does need some physical therapy because of a head tilt. She naturally kinks her head to the side. When she sleep this will cause her head to grow asymmetrically. But with a little PT she will be fine. All in all a pretty encouraging visit at the hospital.
Thanks again for the kindness and prayers.
EDIT:
Well maybe we're not outta the woods yet. Childrens Hospital just called and they want my daughter back for an MRI.
Jim
We had a regular visit with the pediatrician last week. There was a spike in the her head growth with may indicate "water on the brain". Basically the fluid around her brain wasn't being absorbed fast enough and might be causing pressure. The reuslt in a larger head diameter and possibly brain damage. They also were concerned that her vision wasn't good to her left side. She has some difficulty turning her head to the left. On tope of all of this she had pnemonia. We knew she recently got a cough but the night before the doc visit we knew it was getting bad. The pnemonia is pretty much gone now.
Today we went into Childrens Hospital in Pittsburgh. These people were great. Extremely knowledgabe and the most efficient hospital I've ever seen. It was busy but everything got done early and fast. Anyways after all is said and done... she does have a little excess fluid but nothing they're really worried about. We have to go back in a few months for a follow up. No worries with her vision. She does need some physical therapy because of a head tilt. She naturally kinks her head to the side. When she sleep this will cause her head to grow asymmetrically. But with a little PT she will be fine. All in all a pretty encouraging visit at the hospital.
Thanks again for the kindness and prayers.
EDIT:
Well maybe we're not outta the woods yet. Childrens Hospital just called and they want my daughter back for an MRI.
Jim
